We are building a place,
not selling a programme.
There is no cure on offer here and no eight-week course. Here is what you actually get:
Resource hub
Where to go when you need more than a table
We do community, humour and honest conversation. We do not do clinical guidance, legal advocacy or fundraising, so here is who does it properly.
- ANA — Acoustic Neuroma Association. Clinical information, treatment pathways and specialist directories.
- BANA — British Acoustic Neuroma Association. UK-based information and local groups.
- Changing Faces — Advocacy, workplace guidance and skin-camouflage services for visible difference.
- Facial Palsy UK — Rehabilitation, specialist referrals and practical facial paralysis support.
Know an organisation that belongs on this list? Tell us about it.
Questions people actually ask
No. If you have felt a room go quiet because of how you look, move or sound, you are in the right place. That is the entire membership requirement.
The boards, the podcast and the stories are free. If we ever add anything paid, it will be obvious and optional, and the community itself will stay open.
It is not. We are peers, not clinicians. Some support happens here naturally, but for clinical questions use the resource hub above and talk to your own care team.
Yes. Use whatever name and picture you want. Plenty of people here read for months before posting anything, and that is completely fine.
If you love someone who does, you are welcome to read and learn. The boards themselves are for people living it, so the tone stays honest.
Four rooms are open right now.
Pick the one that matches your week, not your chart.